Jess Keeling - Leicester City Football club and JHMT Young Person’s Ambassador
Jess Keeling, aged 17 years old, from Blaby, diagnosed with Long QT syndrome, often a pre-cursor to SADS, in 2008.
Jess was told that she could no longer play competitive sport, at a time when she had been identified by the Football Association as of international potential. A keen footballer, she was determined to continue playing sport and living her life to the full, as she explains,
'I'd go crazy if I couldn't play football. I play four times a week for Leicester City Women, the county and the school. The FA let me play despite my condition and the physio's have a list of the medications that I am not allowed to take. 'It doesn't really affect my day to day life. I'm not supposed to do things that get the adrenaline going, like visiting Alton Towers, but I do. You have to live your life and taking medication reduces the chance of anything happening by 95%'.
Following Joe's death, the Humphries family invited Jess to become the Trust's Young Persons' Ambassador; a role that she feels very passionate about.
'I've talked at launch events and played in the JHMT Legends Charity Football Match.'