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SADS Awareness Week

2-6 October 2017

The Joe Humphries Memorial Trust (JHMT) has established SADS Awareness Week to mark the anniversary of the loss to Sudden Arrhythmic Death Syndrome (SADS) victim 14 year old Joe Humphries from Rothley who suddenly collapsed and died whilst out jogging on 4th October 2012.

Every week 12 young people (12 – 35 years old) in the UK die due to undiagnosed heart conditions. The survival rate from a cardiac arrest in the UK is less than 10% as an average, but it could be 90% if bystanders immediately start CPR and there is access to an public defibrillator within 8 minutes.

To mark this key milestone in the JHMT calendar, on the anniversary of Joe Humphries' untimely death, we hold the annual SADS Awareness Week where we remind and educate healthcare professionals, sports-related professionals and parents and carers of young people about the dangers of undiagnosed heart conditions like SADS. Year on year, we build on the awareness we raise of these heart conditions.

These are preventable deaths and can cause untold, life-long suffering for those left behind. You can make a difference this SADS Week by taking a few simple measures to learn how to save a life:

  • Learn more about SADS – Sudden Arrhythmic Death Syndrome which can strike without any warning in seemingly fit and healthy children and young adults. "Arrhythmic" means that the heart goes into an abnormal rhythm (beat) which can result in either a faint, or a full cardiac arrest (heart stopping and death).
  • to find out more about how your sports club and group can become a member of the growing 'Heart Safe' sports community across the city and county – go to Joe's Mini HeartStart for Sports Clubs training programme.
  • To learn how to do CPR – see www.bhf.org.uk - or search "hands free CPR" to learn from the internet – it only takes 2 minutes to learn how to save a life!
  • To learn how to operate a public access defibrillator – contact JHMT for help with this

Dr Ffion Davies, Consultant Specialist in Emergency Medicine, UHL NHS Trust & JHMT Medical Lead

As the patron of Joe's Trust (JHMT) I would like to thank everyone who has contributed so much time and effort to this year's annual SADS Awareness Week 2017 programme. Once again, a timely reminder for us all about the importance of people having the basic CPR lifesaving skills and knowing how to use a defibrillator. What a bystander does or does not do in those vital few seconds and minutes following a collapse can be the difference between surviving or not, which tragically is the case for so many people every year in the UK (27,000 potentially survivable deaths including young people).
Simple Skills really do save lives and CPR can buy vital time. If more and people understand this one message during this year's SADS Week and take a few minutes to learn CPR so to be better prepared to save a life then we really can make further inroads into giving someone a better chance of survival.

'Thank you' also to the loyal band of willing volunteers who give up so much of their time and share their many talents to help JHMT raise awareness of SADS and goal to reduce the incidence of sudden cardiac deaths in young people (12 – 35 years old) like Joe.

Martin Johnson CBE - patron of JHMT

Show Your Support

Help JHMT save young heart beats

Join our - Every Second Counts to save a life - learn CPR & defibrillation poster campaign

Print off this year's SADS Week 2017campaign posters above and put it up in the office or home. Share with friends and family.

You can also download a copy of the 'Getting to the heart of the matter' screen save advert to promote the week on your Facebook and Twitter home page.

Download Instructions

  1. Right-click on the link to the file you want to download.
  2. Choose "Save Target As …"
  3. Choose where you want to save the file on your hard drive.
  4. Click 'Save'.

Forewarned is forearmed - Learn about SADS (Sudden Arrhythmic Death Syndrome)

SADS is a group of lethal heart conditions that can cause sudden cardiac death in young people between 12 - 35 years. These conditions can be treated and deaths can be prevented. The Trust is working with the medical profession in Leicester and Leicestershire to ensure all families of young people are made fully aware of what symptoms to look out for and the measures that can be taken to prevent further unnecessary sudden deaths like Joe - 'I feel it's something that all parents need to be aware of. If you don't have the information you can't make a choice' - Martin Johnson CBE patron of JHMT

For further information see SADS and the symptoms to look out for

Every Seconds Counts to Save a Life - Learn CPR and how to use a Defibrillator

One of the key priorities for JHMT over the past five years has been our focus on shifting attitudes on the importance of creating a new generation of life-savers who have the basic lifesaving CPR skills in knowing how to save a life. This investment in other European countries and USA has, over time, resulted in increasing survival rates in these countries to 56% compared to only 10% UK. A heart attack is different from a cardiac arrest: during a heart attack the heart will continue to beat but in a cardiac arrest the heart stops beating and no blood reaches vital organs and these become badly damaged. It takes minutes to for this situation to become irreversible, but only seconds to start CPR and save a life.

Dr Mike Ferguson, JHMT said: "Sadly, in the UK, there are 60,000 cardiac arrests every year in the community. Half of these are witnessed, often by family and friends, but the survival rate is less than 10 per cent.

"Only 20 per cent of victims are in a 'shockable rhythm', which is treatable by defibrillation, by the time an ambulance arrives. Survival is much more likely when a shockable rhythm is present.

"The proportion of people in a shockable rhythm could be increased if more cardiac arrest victims received immediate and effective CPR from bystanders. That's why we're so keen to provide this vitally important training and make sure as many people as possible know what to do to increase someone's chances of survival.

"Many school children have been given training in CPR. With the help of many sports clubs JHMT is now concentrating on getting public access defibrillators in, or close to, sports facilities and expanding the basic training to all sports participants.

"With cardiac arrest, it is better for a bystander to do something than to do nothing."

For more information on how you can save a life, please read our instructions on how to carry out basic CPR

Other links:

Joe's Mini Heartstart 4 sports lifesaving sessions

Join Joe's army of Volunteers

If you want to go the extra mile to help Joe's Trust raise awareness and reduce the incidence of sudden, cardiac death in young people, 12 - 35 years old, please come and join us. It doesn't matter whether you can sponsor an event, taking part in fundraising activities, hand out leaflets for an hour, or make a cup of tea.

Join Joe's growing army of volunteers who go the extra mile to make a difference to help JHMT save young heart beats

Events Programme

JHMT Annual Bike Ride

JHMT Annual Bike Ride

Sunday 1st October 2017

Location: Rothley to Staunton Harold and around

Our Annual Bike Ride as part of SADS week will start out from Rothley at 8.30 am - it is approximately 50 miles and we expect it to finish early afternoon. It is a great way to finish Summer and the Bike Season

Details as follows:

  • We start the bike ride from 10 Hornecroft, Rothley with light morning refreshments from 8am and then proceed on a rural route to Calke Abbey and Staunton Harold taking in some pretty Charnwood villages and part of the 'Cloud Trail' .There will be a refreshment break at the Staunton Harold Tea rooms .
  • There is a car park at Staunton Harold (By the garden Centre ) to meet up with families.
  • Return to Rothley via the same route and the option of a team drink at the Bluebell pub .
  • Strictly for 16s and over and under 18s must be accompanied by an adult.

This is an informal event and the Trust takes no responsibility for health and safety. Those joining us are assumed to be aware of the Highway Code, experienced cyclists and will bring suitable tools to deal with any mechanical issues!

Here is a web site with all the route details - https://hissett.wixsite.com/mysite

For further details please contact Simon Taylor on Telephone: 07733 124867.

Come along for the ride, all in aid of a great cause – it is a great favourite with those that have taken part before

Ruffle the Rail Dog and his lifesaving message ‘Everyone can be a lifesaver’ to launch this year’s SADS Awareness Week

Ruffle the Rail Dog and his lifesaving message ‘Everyone can be a lifesaver’ to launch this year’s SADS Awareness Week

Monday 2nd October 2017

Location: Woodstock Primary School, Stocking Farm, Leicester

The launch of Ruffle the lifesaver book written by local author Rachel Greaves for city and county primary schools will launch this year's SADS Awareness Week taking place at Woodstock Primary, Stocking Farm, Leicester. The event will also include CPR training and AED familiarisation training for teachers and parents + the launch of fundraising campaign for a school PAD + a balloon launch by the school children to mark SADS Week 2017.

To find out more about the event, see our article.

To learn more about the adventures about Ruffle the Railway dog, visit www.ruffletheraildog.co.uk

Launch of Joe's Photography Competition

Launch of Joe's Photography Competition

Wednesday 4th October 2017

Location: De Lisle College

The week will also see the launch of the fourth Joe's Photography Competition at De Lisle College, which was Joe's school.

The annual competition, which attracted more than 100 entries per year in 2013, 2014 and 2015, encourages the talents of De Lisle students as part of their Creative and Active Week.

‘Your Hands Can Save a life’

‘Your Hands Can Save a life’

Wednesday 4th October 2017

Location: De Montfort Students' Union, Campus Centre Building, Mill Lane, Leicester, LE2 7DR

De Montfort Students' Union - De Montfort University to host Leicestershire's 'Restart A Heart Day' as part of SADS Week 2017 and ongoing work with JHMT to create a heart safe campus and community for all. Students and staff are invited to learn CPR and how to use an AED at stations placed in the concourse of the refurbished Students Union block.

Date: Wednesday 4th October

Time: 10am - 4pm

Host: De Montfort Students' Union in partnership with EMAS/JHMT and Resuscitation Council UK - De Montfort University,

abigail.battisto@dmu.ac.uk - 0116 366 4813 or jamie.caress@dmu.ac.uk - 0116 366 4895

Simple Skills Save Lives -  hands on CPR and how to use an AED session

Simple Skills Save Lives - hands on CPR and how to use an AED session

Wednesday 4th October 2017

Location: Stephenson College, Coalville, Leicestershire

Students and staff will be invited to learn hands on CPR and how to use an AED, as part of Leicestershire SADS Week 2017 and to coincide with DMU's Restart A Heart Day.

Time: 12 noon – 1.30pm

Host: Stephenson College in partnership with EMAS/JHMT and Resuscitation Council UK - De Montfort University,

Contact:: Andy Allsop, Health and Safety Officer 01530 836136 Ext 237



Thursday 5th October 2017

Location: Hugh Aston Building, Room 0.08: - DMU Campus Centre Building, Mill Lane, Leicester, LE2 7DR

Steps to to create a 'heart safe 'campus and sporting environment for students, staff, visitors and local communities

Dr Ffion Davies, consultant in A&E, JHMT medical lead and SADS expert, along with other key partners will deliver a further JHMT SADS talk at examining what is SADS? and its implications for those who participate in sport and physical activities and to be better prepared in case of a cardiac emergency in and around the university campus and facilities

The talk is open to all students, staff, and members of the community.

Time: starts at 5.30pm – 7.30pm

abigail.battisto@dmu.ac.uk - 0116 366 4813 or jamie.caress@dmu.ac.uk - 0116 366 4895

Leicester’s Heart Friendly Parks –  hands on CPR and learn how to use a defibrillator - ‘free’ session for all members of the community

Leicester’s Heart Friendly Parks – hands on CPR and learn how to use a defibrillator - ‘free’ session for all members of the community

Friday 6th October 2017

Location: Abbey Park Education Centre

Simple Skills Save Lives: 'All who suffer a cardiac arrest will die unless resuscitated within vital seconds and minutes. After all it could be a member of your family, friends or someone you've still not met.' - Learn CPR and defibrillation

Time: 10.00am – 12 noon

Contact: parks@leicester.gov.uk or tel: 0116 273 3574