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SADS Awareness Week

1-5 October 2018

The Joe Humphries Memorial Trust's (JHMT) annual SADS Awareness Week marks the anniversary of the loss to Sudden Arrhythmic Death Syndrome (SADS) victim 14 year old Joe Humphries from Rothley who suddenly collapsed and died whilst out jogging on 4th October 2012.

Every week 12 young people (12 – 35 years old) in the UK die due to undiagnosed heart conditions. The survival rate from a cardiac arrest in the UK is less than 10% as an average, but it could be 90% if bystanders immediately start CPR and there is access to an public defibrillator within 8 minutes.

To mark this key milestone in the JHMT calendar, on the anniversary of Joe Humphries' untimely death, we hold the annual SADS Awareness Week where we remind and educate healthcare professionals, sports-related professionals and parents and carers of young people about the dangers of undiagnosed heart conditions like SADS. Year on year, we build on the awareness we raise of these heart conditions.

For healthcare staff in Leicestershire, there is a SADS conference to educate hospital and community health workers about these subtle conditions and their warning signs. The expert staff at the Glenfield Hospital can diagnose patients, screen their families (many of these conditions are genetic) and prevent future deaths with advice, medication or an "internal" defibrillator. There is a lot to be positive about, so long as staff are aware of SADS.

These are preventable deaths and can cause untold, life-long suffering for those left behind. You can make a difference this SADS Week by taking a few simple measures to learn how to save a life:

  • Learn more about SADS – Sudden Arrhythmic Death Syndrome which can strike without any warning in seemingly fit and healthy children and young adults. "Arrhythmic" means that the heart goes into an abnormal rhythm (beat) which can result in either a faint, or a full cardiac arrest (heart stopping and death).
  • Check your family tree to see if there's any history of unexpected, unexplained death (under the age of 40).
  • To find out more about how your sports club and group can become a member of the growing 'Heart Safe' sports community across the city and county – go to Joe's Mini HeartStart for Sports Clubs training programme.
  • To learn how to do CPR – see www.bhf.org.uk - or search "hands free CPR" to learn from the internet – it only takes 2 minutes to learn how to save a life!
  • To learn how to operate a public access defibrillator – contact JHMT for help with this

Dr Ffion Davies, Consultant Specialist in Emergency Medicine, UHL NHS Trust & JHMT Medical Lead


As the patron of Joe's Trust (JHMT) I would like to thank everyone who has contributed so much time and effort to this year's annual SADS Awareness Week 2018 programme. Once again, a timely reminder for us all about the importance of people having the basic CPR lifesaving skills and knowing how to use a defibrillator. What a bystander does or does not do in those vital few seconds and minutes following a collapse can be the difference between surviving or not, which tragically is the case for so many people every year in the UK (27,000 potentially survivable deaths including young people).

Simple Skills really do save lives and CPR can buy vital time. If more and people understand this one message during this year's SADS Week and take a few minutes to learn CPR so to be better prepared to save a life then we really can make further inroads into giving someone a better chance of survival.

Well done to all those Leicestershire and Leicester sports clubs who are working closely with JHMT to create a heart safe environment both on and off the sports field. In particular, the ongoing partnership work with Leicestershire County Cricket Club and Leicestershire Cricket Leagues to create heart safe environment across all levels of the sport. We hope this will encourage other clubs and sports bodies across the city and county to take the necessary steps to bring about this level of heartsafe practice in community sport.

Once again, 'Thank you' also to the loyal band of willing volunteers who give up so much of their time and share their many talents to help JHMT raise awareness of SADS and goal to reduce the incidence of sudden cardiac deaths in young people (12 – 35 years old) like Joe.

Martin Johnson CBE - patron of JHMT


De Lisle College all set to mark SADS Awareness Week 2018 in memory of Joe

At De Lisle College, we're excited to be able to get involved with SADS Week 2018 and to be able to educate our students about CPR and AEDs, as well as the cardiac conditions that claim the lives of 12 young people each week. This is a cause incredibly close to us, as Joe's old school.

Some of the events that are taking place within the college, over SADS Week, include:

  • CPR and AED Training for all sixth form students, enabling them to be the difference between life and death as they move on to the next step in their lives. (Monday and Wednesday)
  • Joe's Photography Competition will run again this year, allowing students to submit photographs which will then be judged by professional photographers and members of the JHMT team. (Tuesday)
  • At lunchtime, we will also release balloons in memory of Joe. (Friday)
  • Share a PowerPoint with every pupil at the school during form time to raise awareness about the fantastic work of the JHMT. (Thursday)

De Lisle is again incredibly honoured to support the JHMT in their amazing work and we're looking forward to many more years of teaching our students the important lesson which is CPR and how to save a life.

"I remember getting told about Joe's death at school as if it was yesterday. Six years on, it's fantastic to be able to carry on supporting the invaluable work of the JHMT and being able to be taught such a fantastic skill, such as CPR, is great." James Pilbeam, Head Boy

Show Your Support

Help JHMT save young heartbeats

Join our - Make Every Minute Count - learn CPR & defibrillation poster campaign

  • SADS Week 2018 hashtags: #SADSAwareness #SADSWeek2018 #TimetolearnCPR #CPRsaveslives #SADS #12AWeek #keepthebeat #breakingthesilence on #SADS #simpleskillssavelives #heartsafesport #YSCD
  • Print off this year's SADS Awareness Week campaign posters above and put it up in the office or home. Share with friends and family.

You can also download a copy of the 'Make Every Minute Count' screen save advert to promote the week on your Facebook and Twitter home page.

Download Instructions

  1. Right-click on the link to the file you want to download.
  2. Choose "Save Target As …"
  3. Choose where you want to save the file on your hard drive.
  4. Click 'Save'.

Forewarned is forearmed - Learn about SADS (Sudden Arrhythmic Death Syndrome)

SADS is a group of lethal heart conditions that can cause sudden cardiac death in young people between 12 - 35 years. These conditions can be treated and deaths can be prevented. The Trust is working with the medical profession in Leicester and Leicestershire to ensure all families of young people are made fully aware of what symptoms to look out for and the measures that can be taken to prevent further unnecessary sudden deaths like Joe - 'I feel it's something that all parents need to be aware of. If you don't have the information you can't make a choice' - Martin Johnson CBE patron of JHMT

For further information see SADS and the symptoms to look out for

Make Every Minute Count - Learn CPR and how to use a Defibrillator

One of the key priorities for JHMT over the past six years has been our focus on shifting attitudes on the importance of creating a new generation of life-savers who have the basic lifesaving CPR skills in knowing how to save a life. This investment in other European countries and USA has, over time, resulted in increasing survival rates in these countries to 56% compared to only 10% UK. A heart attack is different from a cardiac arrest: during a heart attack the heart will continue to beat but in a cardiac arrest the heart stops beating and no blood reaches vital organs and these become badly damaged. It takes minutes to for this situation to become irreversible, but only seconds to start CPR and save a life.

Dr Mike Ferguson, JHMT said: "Sadly, in the UK, there are 60,000 cardiac arrests every year in the community. Half of these are witnessed, often by family and friends, but the survival rate is less than 10 per cent.

"Only 20 per cent of victims are in a 'shockable rhythm', which is treatable by defibrillation, by the time an ambulance arrives. Survival is much more likely when a shockable rhythm is present.

"The proportion of people in a shockable rhythm could be increased if more cardiac arrest victims received immediate and effective CPR from bystanders. That's why we're so keen to provide this vitally important training and make sure as many people as possible know what to do to increase someone's chances of survival.

"Many school children have been given training in CPR. With the help of many sports clubs JHMT is concentrating on getting public access defibrillators in, or close to, sports facilities and expanding the basic training to all sports participants. Sport now has a "Duty of Care" and already the Leicestershire cricket fraternity have adopted the principle of having public access defibrillators installed wherever possible. This is being mirrored in football and rugby.

"With cardiac arrest, it is better for a bystander to do something than to do nothing

For more information on how you can save a life, please read our instructions on how to carry out basic CPR

Other links:

Joe's Mini Heartstart 4 sports lifesaving sessions

Join Joe's army of Volunteers

If you want to go the extra mile to help Joe's Trust raise awareness and reduce the incidence of sudden, cardiac death in young people, 12 - 35 years old, please come and join us. It doesn't matter whether you can sponsor an event, taking part in fundraising activities, hand out leaflets for an hour, or make a cup of tea.

Join Joe's growing army of volunteers who go the extra mile to make a difference to help JHMT save young heart beats

Events Programme

Joe's Mini HeartStart Training

Joe's Mini HeartStart Training

Monday 1st October 2018

Location: De Lisle College

CPR and defibrillator training led by JHMT's Alan Harrison White will take place with members of De Lisle's sixth form group as part of the school's commitment to equip students with vital life-saving skills to help anyone should they suffer a cardiac emergency in the community – everyone can be a lifesaver.

Launch of Joe's Photography Competition

Launch of Joe's Photography Competition

Tuesday 2nd October 2018

Location: De Lisle College

The week will also see the launch of the fifth Joe's Photography Competition at De Lisle College, which was Joe's school.

The annual competition, which attracted more than 100 entries per year in 2013, 2014/2015, 2016/17 encourages the talents of De Lisle students as part of their Creative and Active Week.

Joe's Mini HeartStart for Sports Training

Joe's Mini HeartStart for Sports Training

Tuesday 2nd October 2018

Location: Narborough Bowls Club

CPR and defibrillator training will take place with members of Narborough Bowls Club, are both committed to creating a heartsafe environment for all their members at the club.

The session will take place as part of JHMT's life-saving training programme, Joe's Mini HeartStart for Sports - and led by lead trainer Alan Harrison White.

SADS in Sport Talk

SADS in Sport Talk

Tuesday 2nd October 2018

Location: Loughbrough College: Talented Athlete Scholarship Scheme (TASS)/Dual Career Workshop

Dr Ffion Davies, consultant in A&E, JHMT medical lead and SADS expert, will deliver a SADS in Sport talk to the college's Dual Career Elite Athletes to increase awareness and understanding of underlying heart conditions that can effect athletes and those who participate in high level and regular sport and physical activities and how everyone can be better prepared in case of a cardiac emergency on and of the field of play.

Steve Wilkinson, FE Sport Tutor & Dual Career Coordinator at Loughborough College said: 'The college is obviously delighted to take part and we hope this will further raise the profile of heart safety among its students and staff, especially as Leicestershire is at the forefront.'

Time:

  • Ffion Davies- Presentation 4.00-4.45/5.00pm
  • Short break 5/10 minutes
  • Alan White CPR and Defib training 5.00pm- 6.15pm approx.

Contact: Steve Wlkinson - FE Sport Tutor & Dual Career Coordinator Loughborough College - Steve.Wilkinson@loucoll.ac.uk

Joe's Mini HeartStart for Sports Training

Joe's Mini HeartStart for Sports Training

Tuesday 2nd October 2018

Location: Leicester Rowing Club

CPR and defibrillator training will take place with members of Leicester Rowing Club, who will have a public access defibrillator on site in a box donated by JHMT at the end of October to demonstrate their commitment to creating a heart safe environment for all their members at the club and the local community in the West End of the city.

The session will take place as part of JHMT's life-saving training programme, Joe's Mini HeartStart for Sports - and led by Dr Mike Ferguson.

Joe's Mini HeartStart Training

Joe's Mini HeartStart Training

Wednesday 3rd October 2018

Location: De Lisle College

CPR and defibrillator training led by JHMT's Alan Harrison White will take place with members of De Lisle's sixth form group as part of the school's commitment to equip students with vital life-saving skills to help anyone should they suffer a cardiac emergency in the community - Everyone can be a lifesaver.

Joe's Mini HeartStart for Sports Training

Joe's Mini HeartStart for Sports Training

Wednesday 3rd October 2018

Location: St Matthews Sports Centre

CPR and defibrillator training will take place with local youths basketball team (average age of youths is between 15-22 years old) called St Matthews All Stars, who play in Leicestershire Men's local league. This training session forms part of the Trust's ongoing work to create a new generation of 'response-ability' athletes who know how to respond quickly and have the skills to save a life should someone suffer a cardiac emergency either in a sports venue or in the local community. Teamwork saves lives and every second counts

The session will take place as part of JHMT's life-saving training programme, Joe's Mini HeartStart for Sports and led by lead trainer Alan Harrison White.

Annual SADS Conference 2018

Annual SADS Conference 2018

Thursday 4th October 2018

Location: Clinical Education Centre, Glenfield Hospital

The annual SADS conference (2018) for doctors, nurses and paramedics in Leicestershire, will take place on Thursday 4th October at the University Hospitals of Leicester.

The Joe Humphries Memorial Trust will be supporting the University Hospitals of Leicester NHS Trust in ensuring that hospital and community healthcare staff are fully aware of the conditions which can cause sudden cardiac arrest in children and young people.

This conference will bring staff of many specialities together, to learn from experts in the field, as well as learning how they can influence their own community outside of hospitals and GP surgeries, to make sure that CPR skills and public access defibrillators are there at any place and any time, to treat and save the lives of victims.

With many thanks to Wel Medical - http://www.welmedical.com/ and Laedal - https://www.laerdal.com/gb/ for supporting this year's SADS conference.

Leicester’s Heart Friendly Parks

Leicester’s Heart Friendly Parks

Friday 5th October 2018

Location: Abbey Park Education Centre

Leicester's Heart Friendly Parks – hands on CPR and learn how to use a defibrillator - 'free' session for all members of the community

Simple Skills Save Lives: 'All who suffer a cardiac arrest will die unless resuscitated within vital seconds and minutes. After all it could be a member of your family, friends or someone you've still not met.' - Learn CPR and defibrillation

Time: 10.00am – 12 noon

Contact: parks@leicester.gov.uk or tel: 0116 273 3574

JHMT Annual Bike Ride

JHMT Annual Bike Ride

Sunday 7th October 2018

Location: Rothley to Staunton Harold and around

Our Annual Bike Ride as part of SADS week will start out from Rothley at 8.30 am - it is approximately 50 miles and we expect it to finish early afternoon. It is a great way to finish Summer and the Bike Season.

Details as follows:

  • We start the bike ride from 10 Hornecroft, Rothley with light morning refreshments from 8am and then proceed on a rural route to Calke Abbey and Staunton Harold taking in some pretty Charnwood villages and part of the 'Cloud Trail' .There will be a refreshment break at the Staunton Harold Tea rooms .
  • There is a car park at Staunton Harold (By the garden Centre) to meet up with families.
  • Return to Rothley via the same route and the option of a team drink at the Bluebell pub.
  • Strictly for 16s and over and under 18s must be accompanied by an adult.

This is an informal event and the Trust takes no responsibility for health and safety. Those joining us are assumed to be aware of the Highway Code, experienced cyclists and will bring suitable tools to deal with any mechanical issues!

Here is a web site with all the route details - https://hissett.wixsite.com/mysite

For further details please contact Simon Taylor on Telephone: 07733 124867.

Come along for the ride, all in aid of a great cause – it is a great favourite with those that have taken part before

All Hands On! For this year’s Restart A Heart Day

All Hands On! For this year’s Restart A Heart Day

Tuesday 16th October 2018

Location:

Restart a Heart is a designated yearly day of action with the aim to teach vital life-saving cardiopulmonary resuscitation (CPR) skills to as many people as possible. The Resuscitation Council (UK) are partnering with the British Heart Foundation, British Red Cross, St John Ambulance, Greater Manchester Fire and Rescue, Yorkshire Ambulance Service and all of the UK ambulance services to train over 200,000 people in schools and communities on and around 16 October for the fifth annual event.

There's still time to get involved, whether you'd like to host an event or volunteer for one - learn more here http://bit.ly/2NOwhed